‘We are flying blind’: RFK Jr.’s cuts halt data collection on abortion, cancer, HIV and more

“The federal teams that count public health problems are disappearing — putting efforts to solve those problems in jeopardy.

Health Secretary Robert F. Kennedy Jr.’s purge of tens of thousands of federal workers has halted efforts to collect data on everything from cancer rates in firefighters to mother-to-baby transmission of HIV and syphilis to outbreaks of drug-resistant gonorrhea to cases of carbon monoxide poisoning.

The cuts threaten to obscure the severity of pressing health threats and whether they’re getting better or worse, leaving officials clueless on how to respond.”

https://www.yahoo.com/news/abortions-cancer-firefighters-super-gonorrhea-140000788.html

RFK Jr. vowed to upend American health care. It’s happening faster than expected.

“Five months later, federal health officials, industry executives and the public health community say they’re more worried than ever.

Kennedy in his first seven weeks atop the Department and Health and Human Services has dramatically reshaped the U.S. health apparatus, eliminating entire agency divisions, abruptly shifting policy priorities and leaving the sprawling department in what six current and former employees described as an unprecedented state of upheaval.

The health secretary and his team forced out top scientists in charge of developing new vaccines and evaluating the safety of medicines, stripping away centuries of collective expertise and institutional knowledge. Government offices that manage key functions like ensuring safe drinking water and alerting Americans to contaminated drugs have been decimated.

In the meantime, Kennedy appointees have sought greater control over scientific decision-making in agencies such as the Centers for Disease Control and Prevention and Food and Drug Administration — going against longstanding norms and roiling a health sector that accounts for nearly one-fifth of the U.S. economy.

“It’s a mess,” said one former senior HHS official granted anonymity to discuss internal matters. “What was once a very robust place to work, that was trying to lead on innovation, is gone. It’s just gone.”

The rapid overhaul, punctuated by last week’s mass firing of 10,000 employees, has left the HHS workforce traumatized and the broader health community in deep distress, according to interviews with nine current and former health officials, as well as five other public health experts and industry officials, most of whom were granted anonymity for fear of retribution.”

““They got rid of all the people who made the place work,” said one health official. “It doesn’t seem to be achieving their aims. Unless their aim was just to cause chaos and torpedo morale.””

https://www.politico.com/news/2025/04/09/rfk-revamp-health-hhs-00280101

So Much For RFK, Jr.’s Promise of ‘Radical Transparency’ at HHS

“The Food and Drug Administration’s (FDA) upcoming Vaccine and Related Biological Products Advisory Committee meeting on March 13 was abruptly canceled via email on Wednesday. The committee was to consider the selection of strains to be included in the influenza virus vaccines for the 2025–2026 flu season. This is the second vaccine-related advisory meeting canceled since Robert F. Kennedy, Jr. took over at the Department of Health and Human Services (HHS).
No reason for the cancellation was given, and the committee members were warned against forwarding the email. It suggested that members decline to answer questions from media.

So much for Kennedy’s pledge earlier this month of “radical transparency.” He added, “We will make our data and our policy process so transparent that people won’t even have to file a FOIA [Freedom of Information Act] request.”

In addition to suggesting members of the FDA’s vaccine committee stifle themselves, the HHS will publish a notice next week in the Federal Register to eliminate public comment on that agency’s plans and decisions. While past meetings have been open to public scrutiny and participation, it is not clear if the new limits will apply to future meetings of the committee.”

“Noting that the U.S. is currently experiencing one of the worst flu seasons in a decade, Infectious Diseases Society of America president Tina Tan warns that “cancelling a critically important Food and Drug Administration meeting that is vital to the development of effective flu vaccines for next flu season is irresponsible.” She adds, “Cancelling this meeting means vaccine makers may not have the vital information and time they need to produce and distribute targeted vaccines before the next flu season. If the FDA meeting is not immediately rescheduled, many lives that could be saved by vaccination will be lost.”

RFK, Jr.’s HHS promises that the FDA “will make public its recommendations to manufacturers in time for updated vaccines to be available for the 2025-2026 influenza season.”

We’ll see.”

https://reason.com/2025/02/28/so-much-for-rfk-jr-s-promise-of-radical-transparency-at-hhs/

Hackers have laid siege to U.S. health care and a tiny HHS office is buckling under the pressure

“the Department of Health and Human Services’ Office for Civil Rights, which is tasked with investigating breaches, helping health care organizations bolster their defenses, and fining them for lax security, is poorly positioned to help. That’s because it has a dual mission — both to enforce the federal health privacy law known as HIPAA and to help the organizations protect themselves — and Congress has given it few resources to do the job.
“They’re a fish out of water … They were given the role of enforcement under HIPAA but weren’t given the resources to support that role,” said Mac McMillan, CEO of CynergisTek, a Texas firm that helps health care organizations improve their cybersecurity.

Due to its shoestring budget, the Office for Civil Rights has fewer investigators than many local police departments, and its investigators have to deal with more than a hundred cases at a time. The office had a budget of $38 million in 2022 — the cost of about 20 MRI machines that can cost $1 million to $3 million a pop.

Another problem is that the office relies on the cooperation of the victims, the institutions that hackers have targeted, to provide evidence of the crimes. Those victims may sometimes be reluctant to report breaches, since HHS could then accuse them of violating HIPAA and levy fines that come on top of costs stemming from the breach and the ransoms often demanded by the hackers.

Depending on the circumstances, it can seem like blaming the victim, especially since the hackers are sometimes funded or directed by foreign governments. And it’s raised questions about whether the U.S. government should be doing more to protect health organizations.”

Migrant Children Languished in Filthy Conditions Under Eye of Untrained Contractors, Whistleblowers Say

“Laurie Elkin and Justin Mulaire, two federal employees who were detailed to the Fort Bliss emergency intake shelter near El Paso, Texas, filed a whistleblower complaint to Congress alleging they witnessed intolerable noise, filth, and odors inside the large tents where children are housed; contractors who were unqualified to work with youths; and hostility, indifference, and resistance to providing medical treatment to sick kids.”

“Elkin and Mulaire say they were repeatedly ignored or discouraged by Department of Health and Human Services (HHS) superiors when they tried to report the substandard conditions and care children were living under.
The allegations track closely with reporting from Reason and other outlets from earlier this year describing unsanitary conditions and poor care for children housed in the shelter.”

“The total number of migrant minors being held by the U.S. government has waned, from more than 20,000 to roughly 14,500, according to the latest numbers from HHS.”

Lawsuit Says Conditions Inside Biden Administration’s Shelters for Migrant Teens Are ‘Inherently Unsafe’

“In theory, these sites, run by the Department of Health and Human Services (HHS) are a way station for kids who are waiting to be reunited with relatives or other connections in the U.S. In fact, staffing problems and other issues left many kids stuck in limbo for up to a month or more in conditions that federal whistleblowers, lawyers, and the children themselves have described as filthy and chaotic.

“For months, the children we have met with at the EISs have shared one horror story after the next,” Leecia Welch, senior director of child welfare and legal advocacy at the National Center for Youth Law, said in a press release. “Children have described spending the bulk of the day on or around their cots crammed in massive tents with hundreds of other children, suffering escalating anxiety attacks from the stress of the harsh EIS environment, going weeks without clean clothes or underwear, and spending months without going outside for some fresh air. While some of the unsafe EIS facilities have been closed, mega tent encampments and mining mancamp sites like Fort Bliss and Pecos remain open with no end in sight.””

Lawsuit: Immigrant Kids Are Suicidal, Eating Rotten Food in Secretive Detention Facilities

“Over 14,000 unaccompanied minors are now in the care of the Department of Health and Human Services.

Detained minors in their testimonials for the case described limited time outside, sporadic showers, and being served inadequate or unsafe food, including raw chicken and foul-smelling hamburgers. A 13-year-old Honduran recounted being “locked up all day” during five days in Customs and Border Patrol (CBP) custody. A 14-year-old Guatemalan girl said that detainees at a facility in Houston had to drink expired milk when they ran out of water. “I was never allowed to make a phone call while I was there,” said a 17-year-old Honduran who was in CBP custody for 11 days. Minors reported receiving few details about how long they would be in custody and many were transferred to other facilities with little notice or explanation.

Those conditions have left detained minors despondent. “I used to be able to cope with my anxiety and breathe through it, but now I feel like I’ve given up,” said a 17-year-old from Guatemala. “I feel like I’ll never get out of here.” One child was placed on suicide watch and another described how difficult it was to get an appointment with a counselor, though many girls in detention “have thoughts of cutting themselves.” Teens have resorted to cutting themselves with their identification cards since employees at one facility banned pencils, pens, toothbrushes, and even the metal nose clips of N95 face masks over concerns of self-harm, according to testimony and worker accounts.

“There is no one here I can talk to about my case,” said a 17-year-old Honduran detainee. “There’s also no one here I can talk to when I’m feeling sad. There’s no one here; I just talk to God. It helps me and I cry. It would help if I could have a Bible.””